It has been three weeks since my husband's surgery and 10 days since he returned home from the hospital. There has not been a whole lot of change, but a lot of ups and downs, mostly downs.
He has ate very little food for over three months, and he is really having a hard time eating. It is hard for us who have never had that problem to understand. But for him it is almost impossible. His stomach has shrank so much that he can only put a few bites in his mouth at a time. Also, it is a bit mental too. For three months every time he put food in his mouth, he would instantly have to run to the bathroom. I guess in his mind he was trying to protect himself. Now he has to get a new mindset that food is not his enemy, that it is his friend and he must eat to get better.
This has been the most stress that either of us has ever had to deal with. For a long time before this I was able to get plenty of rest and take care of my fibromyalgia. I was home by myself all day, I could sleep when I needed to and in general do what my body needed me to do to control the pain. My husband ran most errands on his way home from work, did most of the grocery shopping and I didn't have to do much running around.
This summer I have not been able to any of the things that I need to do to take care of myself. I have decided that I am going to be tired forever! I can't see an end to the tiredness any time in the future. I do everything now. As far as pain goes I no longer can tell where it starts or ends. It is constant. The second week in the hospital I went through the worst bout of fibro fog ever. I was so overwhelmed that I couldn't make sense of anything. I wasn't making sense to anyone else either.
I am pretty sure that when everything gets normal again, my husband finally getting well and back to work, I am going to go to bed and stay there for however long it takes. That could be days, weeks or months, whatever it takes to get well again.